Complex regional pain syndrome, or CRPS, is a relatively recent name for related conditions that have been known by other names in the past, such as “reflex sympathetic dystrophy” (RSD) and “causalgia.” What was often referred to as RSD in the past is now more commonly known as “CRPS-I,” and what was called causalgia is now more typically referred to as “CRPS-II.” Other names have included reflex neurovascular dystrophy, algoneurodystrohpy, sympathetically maintained pain, and Sudek’s syndrome. As might be guessed from the many names for these associated conditions, they are complicated and often not well-understood. They generally involve trauma to the peripheral nerves and have symptoms involving the sympathetic nervous system.
People who have sustained catastrophic injuries (and their families) are often in need of very specific, specialized information regarding the injury suffered, the latest care and support options, research into new treatment options, and the psychological and emotional support that can come from connecting with other people who have suffered similar losses. For some of the categories of catastrophic injuries, the following resources may be helpful: